Prednisone Liberation Day!

It’s Prednisone Liberation Day! The last one…for now. Imuran shall be the sole MG caretaker starting tomorrow. Imuran has had nearly 7 months of training. Despite the very, very rough start and me threatening to toss it and myself over a cliff I think it has true potential to help keep me upright and not so droopy and ragdoll-ish. We’re still working on the hair loss issues, but I think we’ll be ok. Good riddance Evil P.


Of food and dieting

Food. It’s something we all need to live. It’s sad that a lot of people are emotional eaters—they eat when they’re depressed, angry, bored, etc. Some are addicted to taste. Then there are those of us who have to be forced to eat when we’re upset. Personally, I’ve never been one to eat when upset. Food quickly makes a u-turn if I eat while upset. I like my food to travel one way—south.

I’m one of those people who has always had a sensitive digestive system. Food constantly made u-turns as a child. No, it wasn’t my mother’s cooking. She’s an amazing cook. I’m just über sensitive to a lot of things.

Given my many food issues, you’d think I’d be as thin as a rail. I was…until my late 20s when Celiac disease and a wheat allergy were uncovered. My poor immune system went from being kind of ok to being a war zone and I’m apparently the enemy!

I see so many people around me on various diets. Good luck to them. I’ve never been one to follow the herd. I’ve gone through all sorts of eliminating this and eliminating that over the years. I’ve tried low-carb, higher protein (I’m a vegetarian so this is challenging), no processed/refined sugar, no this, that, and the other. I’m done giving up stuff.  I will eat whatever does not upset my stomach. It’s the Don’t-Upset-My-Stomach diet. If it makes tummy unhappy, it will no longer be consumed. Period.

I have been on high doses of prednisone since October of last year to help with myasthenia gravis symptoms. This little necessary evil pill has added a lot of extra weight to my 5’5” frame. A lot of it has actually been water weight. Regardless, it has been very uncomfortable. I swear I slosh when I walk! My neurologist, seeing that it has not helped me and has only caused more suffering, started weaning me off of it in May. I’m finally seeing some of the weight come off! I’m one of the fortunate prednisone consumers who did not develop the insatiable food cravings. In fact, I think I’ve eaten less since I’ve been on it because my appetite has gone by the wayside. I haven’t even wanted chocolate in a couple of weeks!!! That’s just wrong!

I had one very brief chocolate craving. It went away in about five minutes without me eating any. A miracle, a sign I’m really sick, or just the Universe doing me a favor? I guess I’ll just go with it.

Here’s hoping the weight continues to drop off despite me not being able to exercise the way I used to.

Sleep and mashed potatoes

I’ve slept and slept and slept over the last few days. I managed a couple of hours at my parents’ house for the 4th of July. Came back home and slept. Went to work Friday. Slept and slept Friday night. Managed to run two small errands on Saturday afternoon. Came home and slept. Woke up and read for a short bit and went to bed for 12 more hours of sleep.  Over the same few days, I’ve noticed my heart rhythm has been out of whack for the first time in a couple of years. Not sure if it’s the prednisone beast causing more chaos or something else.

Some say excessive sleeping is a sign of depression. I don’t feel sad or anything. Actually, emotionally I feel rather neutral. Physically, I feel like crud.  My mouth has been crooked all afternoon. My muscles feel like mashed potatoes today. Muscles are not supposed to feel like mashed potatoes.

MG, I need to punch you and your friend prednisone in the face.