My Christmas wish: A cure for autoimmune diseases
Wow! I can’t believe how busy I’ve been since I last posted. I’ve had lots of ideas that I’ve jotted down on scraps of paper and my many notebooks, but I’ve yet to write out any of them. One idea I will write up is for new year’s eve/day.
So much has transpired since my last post. I finally made it up to the maximum (for me) dose of Imuran to control myasthenia gravis (MG) and deal with whatever other crazy autoimmune crap is going on (some doctors are leaning toward lupus, others say it isn’t). I say if it walks, quacks, and looks like a duck, it’s a duck. The increase in Imuran has actually helped the joint pain and has eased the gland swelling and random fevers. Plus, MG has been relatively calm. Raynaud’s is being suspected now with the crazy cold, blue/purple, and aching hands and feet when they become even slightly chilled. Whatever … I now LOVE wearing thick socks. I never, ever thought I’d say that being the queen of bare feet around here. Good thing I received more socks for Christmas!
In other news, I’m wrapping up a four-month project as part of my new business venture. I now have to seriously work on bringing in new clients. I’m being faced with balancing rest and quiet time with time of action and work. It’s quite the challenge but MG has a way of reminding me how to do it. Hmpf, who am I kidding? MG ambushes me and knocks me flat on my arse the second I overdo it!
I spent 12 hours with family yesterday for Christmas. It was a wonderful day spent laughing, eating wonderful food, exchanging gifts, and generally enjoying each others company. We had to bury one of my cousins earlier in the week so it was a much needed emotional break for everyone. Despite the fun time, I am paying for it today. It’s nearly 6 p.m. and I’m still in my pajamas. I’m T-I-R-E-D! I’ve not showered or anything today. Two hours after I woke up, I curled up on the couch for a nap, which was interrupted by breathing issues out of the blue. So, back up I am. What better way to use my time than writing?
Those of us who battle chronic illnesses often struggle with family and friends who just don’t understand the challenges we face every day. I can say that the family side of my world—well, at least my immediate family—has been cool with my situation. I’m grateful! Many of them still don’t fully understand my illnesses, but they’re supportive. Only one gripe, there are still no gluten-free options for me on the dessert table unless I make something. That isn’t a problem normally for me, but MG tests my strength and energy. I managed to make a soup that was requested of me during Thanksgiving. The soup is relatively simple, but I still didn’t have any spare energy to pull together a dessert. Perhaps, I’ll make a treat for new year’s eve/day to go with my popular spiced black-eye peas.
I’ve been invited to a meditation and potluck for New Year’s Eve. The weather might be a bit icy so I’ll have to wait until the last minute to know if I’ll actually attend. I’ll be content either way. If I stay home, I can put on my pajamas early, get my burning bowl together, have my sparkling cider, and be safe in bed by 12:01 on New Year’s day to prepare to go to my favorite place for sunrise (if the weather plays nice) later that morning.
Well, looky here, it’s 6:20 p.m. now. As I mentioned earlier, I’m still in my pajamas, which means I don’t have to prepare for bed. There are serious advantages to remaining in your PJs all day. 😀